Category Archives: Parenting

Tending to Ending

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My father on Father’s Day, his last awake day, seeing the Pacific Ocean in Trinidad, one of his final wishes.

As I began writing this piece there were four more days of sitting shiva happening in our home. This shiva process has been an incredible blessing for me. I have facilitated and been present for many folks at this time, but never been the one to receive this offering. This last year, my father’s death was always on the table. We all knew it could happen at any time, but his will to live and his longevity, had us all a little fooled.

It’s been hard for my husband and I not to blame ourselves for taking him to the beach on a day that turned cold. It was sunny when we left the house, but by the time we got to Trinidad, the weather was cloudy. Also, it was the once a year fish festival, so everything took a very long time, which really wasn’t good for my father. The excursion to the beach was the equivalent of an aerobic work-out for a man with a weak heart, bound to hasten his heart giving out. I didn’t think this at the time, because my father, even in his slow weakening over the last few months, still seemed so vital and alive. This is not about my guilt, although I have some, which I think is okay. Perhaps he would have died a few days later or we might have had him for a few months more. If I’d been in charge, we certainly would have had more time together in the sun and in our home. I’m not in charge though, the Holy One is. My father’s pull date was never in my control.

It was a good last day of him being aware and enjoying his family and surroundings. As we were walking by the Seascape restaurant on the pier, my father said “wouldn’t it be nice to have some French Fries?” I’d been cooking for days to make a Father’s Day Moroccan dinner for my Papa and my husband, and I knew that French fries would eliminate any chance of my father eating that meal. I motioned for my husband to take him down to the pier and indicated that I’d go procure the fries as a surprise for my Papa (papas for Papa).

It took forever, because the restaurant was packed. I’d never ordered fries from this particular place, but when I finally got them fifteen minutes later they were in a large brown paper sack, that was warm, with grease coming through. Kevin and my father were coming towards me and I handed my chilled father a hot bag of fries. His face lit up, he put his hand in the bag and encountered warmth and grease and took a bite and was so happy. We all tried some and I have to say, I do not think I have ever had better fries in my entire life. I am never going back to this restaurant because they are seriously dangerous and I might only ever eat fries again for the rest of my life. Ethan, Kevin, my father and I just kept reaching our hands into the bag. It was truly a never-ending bag of magic delicious ever-warm fries.

We loaded my father back into the car and decided to take the scenic route home, hoping for some sun over the water. This was a bad choice as well, because the road was bumpy and my dad had to hold onto the handle above his seat to feel secure in some parts and that was effort-full and the sun never came out, so the view was obscured and it was just a long twenty-minute bumpy drive. By the time we got to our home and I got my father in his bed, he was not feeling well and had spiked a fever. This was the first fever he’d had since I took over taking care of him (over 6 months full-time care) and I knew it wasn’t a good sign.

Our beloved friend Ana, one of our care-givers, and her boyfriend, had come over for dinner. Originally my father had wanted to meet the boyfriend and give his approval or not! This was not to be. While my sons, husband and our company were eating the meal I’d prepared, I was with my father, trying to get him comfortable. The Humboldt Hospice nurse and I were on the phone a great deal and I got Tylenol into him and started him on .25 ml of morphine every hour for the first time. Ana, gave me a short break and I had a quick bowl of soup while she held his hand. Then Issac and Ethan took a turn.

I spent that evening giving him doses of morphine every hour or more, but in the morning he was miserable and uncomfortable and told me he was miserable. At this point the nurse was on her way and I asked him to wait a few more minutes before I upped his morphine dosage. I thought perhaps the nurse would advise me to do something different or more. He agreed to wait and our regular nurse Tiffany came to our rescue. She wasn’t supposed to be working that Monday, but the Holy One and the Angels must have worked some magic for us, because she happened to have traded shifts with someone, without knowing at the time, we would need her so desperately.

This was huge for me and my father, because she wasn’t someone he didn’t know. She knew him, us and our situation. She helped me get my father set up better in the bed and told me to increase the amount of morphine from .25ml to .50ml every hour and to let me know if that wasn’t working. It did work and from that point on, my father was not uncomfortable or suffering, that we could tell. She told me to call family and tell them he had a day or a few more hours most likely left. She felt certain that he’d had some kind of episode, and I felt so too, because his hands were shaking a lot and he just never had that happen before. I spoke with my brother in Boulder and told him to come now if he felt he needed to. He and my daughter looked into it, but it was pretty clear things were moving very fast.

So, with the help of my sons, we set up the computer by the bed so he could see them and they could see him and my smart technology savvy sons made it possible for my brother, his partner and my daughter to say goodbye to my father visually. He was still conscious and saw them and could smile, but couldn’t talk. He was lucid until his last two hours and could communicate with me via his mouth. I would ask him if he wanted more morphine or water or chocolate (his favorite thing in the world). “Yes,” would be open mouth, “No,” would be closed mouth, and this worked for us. When the small glass I was using, made by my friend Bryan Raskin of Mirador Glass, no longer worked, he was hydrated throughout his last hours with dropperfulls of coconut water or water. I hate plastic and the feel of the smooth glass was soothing for my father and for me.

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My Papa, Jacques Barchilon, born Jacobo Alberto Cohen, in Casablanca Morocco in 1923. He is pictured here: in his Free French Forces uniform; on the day of his wedding to Judy, the love of his life, at the age of 75. The beautiful woman in the back is his mother Perla Barchilon. The sign translates as “Careful! Mean Dog, Ferocious Master.” My father had a bark, but never a bite and didn’t have a dog, but this sign was on his door. The glass from Mirador that I gave him his last liquids with, his wedding ring, his watch as well as stones to remember him by, (a Jewish thing).

During my long vigil with my father (from Sunday afternoon until Tuesday, early a.m. hours), in the afternoon on Monday, I started getting a Maurice Chevalier song playing in my head. It was from our childhood and the chorus goes: “Paris, je t’aime, je t’aime, je t’aime.” Which means, Paris I love you, I love you, I love you. Now, Paris is where I was born, where my father had the best times of his life with his beloved wife Judy, may her memory be for a blessing. I changed the lyrics interspersing, “Papa, je t’aime….,” with the Paris part. He loved that and smiled. I told my brother and he found the original record we’d listened to as children and he put that on for my dad, via our technology sharing. My papa loved that.

The computer became a hindrance, since I wanted to be holding my father’s hand and he wasn’t really in a visual mode anymore. So, we switched to speaker phone and for the final hours of my father’s life in a body, my brother, his partner and my daughter were present. My mother and Kenny were also able to say goodbye this way and this was very important and a huge further healing/tikkun. We all sang to him and cried with him and told him we loved him and would miss him, but were ready for him to go. He was pretty lucid until shortly before his dying. The last words he heard was my chanting the Shema to him.

I will write more about my father’s final weeks and his coming to a belief in an after-life, after 95 years of avid and strong atheism. This made his leaving, for me, so much easier, because he was finally less afraid and had a bit of hope about joining his wife and daughter, my sister Paula. He took his final breaths in the arms of myself and my son Ethan, with our family present for him across many miles via technology that was truly a gift.

Jacobo Alberto HaCohen, (name at his birth), Jack Lawrence (nom de guerre, inspired by his favorite author of the time D.H. Lawrence, so the Nazi’s wouldn’t know he was a Jew, in case he was caught), Jacques Barchilon (American name), Jacov ben Perla v’Haim (Hebrew name) lived 95 full, intense, painful and glorious years from 1923 to 2018, he will be missed.

L'hiver
From my father’s home, which I brought back with me to my home, and which exactly describes what he received from my brother and me. “Quand un père chéri, glacé par la viellesse, Reçoit de ses enfants les soins les plus touchans, Il voit le sombre hiver s’écouler sans tristesse, Et s’endori attendri dans leurs bras caressans.” When a beloved father, made brittle and hard by old age, receives from his children the most tender and touching care, He sees the somber winter of his life evaporating without sadness and falls asleep attended by their caressing arms.

 

 

 

Sharing Stories, Settling Down, Sorting, Sifting and Slowly Letting Go.

Morocco Street by Perla
Painting of Moroccan street scene by Perla Barchilon, mother of José, Arthur, Lili, Jacques and Maurice, my paternal grandmother. The colors here are not as bright and vibrant as the painting itself.

 

“I’m depressed, Nicole and I have many regrets.”

“Well, Papa, that’s understandable. You are slowly dying and your body is getting weaker every day. This is not easy or pleasant and your mind is completely aware of this slow degradation of your body. Your beloved wife died a few months ago; you have lots of reasons to be sad.  I think you are incredibly courageous to be navigating this time the way you are. I wish there was more I could do to help you feel better. Would talking about your regrets be helpful? I’m here if you want to share.”

And then my father started to tell me about his deepest regrets and how badly he feels and what a failure he was with certain people. He mentioned how he behaved towards his mother. This was his first statement of regret. My father has never said one nice word about his mother in the entire time I’ve been alive. Every story about her is negative and puts her in a bad light. So, for him to say, he felt badly about how he treated her, is pretty monumental. I feel waves of energy and spirits are moving through the space as my father shares. It’s a timeless and powerful moment. I also need to mention that my father regularly shares that I am like his mother, especially around how much food I prepare and eat, but unlike his mother I do not force him to eat anything.

I ask him about what he regrets in terms of his behavior towards his mother, my grandmother Perla. He says he wasn’t empathetic to her and didn’t have empathy towards her situation. I asked him if he’d ever apologized to her and he said he had and that  she had told him: “You never need to apologize to a mother.”

Perla Posing
Perla, age sixteen or seventeen, Morocco right around the time she married my Gran-papa, around the turn of the century.

This is the first remotely loving story my father has ever told me about his mother. I can see her dismissing my father’s apology with this statement in one way and also being very moved by it. My grandmother, Perla Barchilon y Cohen was an amazing woman, but she wasn’t the mother my father wanted or needed. Nevertheless, he has a portrait of her in a place of prominence that my mother did of her, when she came to Paris for my birth over 54 years ago.

We spoke more about his mother and I asked him if Perla had ever been empathetic or sensitive to him, if she had taught him how to be kind and empathetic? He said “No,” and I pointed out that he didn’t have any role models growing up about how to be the way he wishes he had been. I told him I was amazed at his empathy and how he was still growing and working on improving himself. We spoke about how Judy, May her memory be for a Blessing, was the person who finally taught him the empathy he wanted to have. She showed him how to be kinder and to think about the feelings of others more. He agreed with me about this and it made him sad to talk about Judy.  Perhaps we will revisit this mother regret, but I hope that he feels freer to let this one go now.

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Perla Barchilon, age seventeen probably.  At the age of sixteen, she was married to my grandfather Jaimé Cohen (Spanish version of  the Hebrew name Chaim). He was 20. She had five sons and was a wonderful painter in Morocco in the early part of the last century. She lived through World War II in Morocco and her artwork was celebrated and respected for over fifty years. She was a Jewish woman in a Muslim country and she was a painter. I remember her still painting when I was a little girl in Morocco. She was a very old woman at that point in her seventies, which now that I’m 54 doesn’t seem that old to me. She was born around 1898 and died in 1988.

I am in this very complex place of trying to comfort my father in any kind of way that works for him. I’m trying to balance my inclination to impart, share,  and perhaps somehow convince, through my touch and my heart and my presence, the tremendous relationship to Holiness and to Hope that is possible for my father. I don’t want him to be sad, depressed, afraid or certain that his end is an end. He has no belief in any spiritual system at all.

Whereas, I am walking into and out of Olam Ha Bah and the Angelic and Supernal Realms often. I feel these energies surrounding my father and I’m wanting him to feel the presence of the Divine and to know that he will be safe, at peace and not suffering after he dies. This is my need. My father is a devout Atheist. He maintains there is no such thing as a soul, so he doesn’t have one and there won’t be any Heaven for him.

In the Jewish tradition, we have a final confession as part of the dying process. We didn’t borrow this from the Catholics, they probably got the whole idea from us! Our confession is very different though. It is called a Viddui and is said by someone when they are on their deathbed. It is a general request for forgiveness for all wrongdoings in our lives and a listing of those wrongs. It also has a clause/caveat that states, we might not be dying, a miracle could happen and we might recover, but we still want to be clear now. I love the language of this, asking for forgiveness, stating our wrongs and then saying, we might get better, who knows? This might not be a final confession after all.

In addition to the final confession, there are daily, weekly, monthly and yearly cycles of self-scrutiny, correction, confession of wrongs to the person one has wronged, making amends and attending to the patterns that might be causing us to make these errors. We’re all about confession, it just doesn’t happen in a box with a priest and a screen.

I keep looking for opportunities for my papa and I to cross the bridge between my world and his. I don’t need him to change or believe, I just want him not to be in pain or distress, physical or emotional. If there is something I can offer to ease his suffering, than I want to do it. He appreciates my touch, my cooking, my massages and my taking care of his daily and nightly needs. He is grateful for my care and the care of my brother Paul and the caregivers we have working with us.

Since I’ve been living with him in his home in Denver, there have been many moments of storytelling and he has asked me to query him and volunteered to share whatever stories or ideas with me, with my brother, and with others who want to know more. How can I ever know all that he wants to share or even what questions to ask? I think I know my father pretty well and most of his life’s stories have been written down or lived together or shared. I think he is not a mystery to me. I am so wrong about that.

I ask my father about his dreams in the morning. I ask him about his sadness and if he wants to talk about anything, when he volunteers that he is sad.

I ask him what he wants for breakfast and how long I should wait before checking on him when he is in the bathroom. I ask him what number heat setting he wants on the heating pad and I ask him if there is anything I can do to make him more comfortable. His reply is usually, “Make me forty years younger and smile.”

His dream the other day, the one he remembered to tell me, went like this:

“I dreamed I was in the home of a very famous man, you will know who he is, Freud. I was rearranging the furniture in his house.” Another dream had been that he was in NY, and there was a starving, lonely cold child on the street and he was with Eloise (the famous NY storybook character who lives in a hotel). She was talking to someone about how much money should be given to this girl and my father and she agreed that it should be $100,000.00. What’s interesting about this dream is that he didn’t remember the name of Eloise, but he remembered that his niece Coco loved this character and so I suggested we call her and ask her if she remembered the name of the NY storybook character. Just as we reached Coco, Papa, said “Eloise!”

His mental acuity stuns me, and I truly feel at half his capacity. I can’t remember things from my childhood or my children’s childhoods, the way my father remembers his niece’s favorite storybook from over fifty years ago. His memory is a golden mine of treasures and I don’t think my brother and I will ever plumb its depths.

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For now, though, I am grateful for my technology that is allowing me to record his stories when he wants that done. Every tale he tells is a golden offering that will be of value to me and to all of our family.

I hope I have the presence of mind and the loving care and support my father has when I am leaving this world. We all deserve to be with those who love us and where we are comfortable, surrounded by our art and what makes us feel at home; to be safe and to suffer as little as possible.

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Portraits of Perla and my brother Paul Barchilon by my mother Helen Redman, hanging on the wall with paintings by Perla. Also, a Moroccan print of my brother’s in the bottom corner.

 

 

 

 

Having Arrived…

Shabbat Flowers.
Shabbat table and flowers on Paul Barchilon’s  coaster in the home of my father.

It has taken me a few weeks to actually get here. Here being Denver, Colorado in the condominium of my father and his wife Judy, may her memory be for a blessing. I was grieving leaving my life and my husband, my garden, the Redwood tree who is my friend off my deck, my bed, my community and so many other parts of where I live.

But now, Here I am, Hee Nay Nee, הנני

I am fully here and arrived in Denver. Even though I moved here in mid-December, it has taken me a little while to actually get and BE here. I was going through the motions; getting the meals cooked, the laundry done and attending to my father’s needs just barely. I say just barely because my heart wasn’t in it. I’ve been preparing for this time, for years, literally over 15 or more. I’ve known that there would be a brief moment between raising children and my needing to help care for my father, my mother, my beau-père and my mother- in-love. That time has arrived and regardless of preparing for it, the actual transition to it, has been, like all transitions, not so easy.

I felt so bad, not being happy to be here, not being happy to serve. In my piece S.O.S (Surrendered Open Serving)  I wrote about serving the Holy One with Joy. This work is serving the Holy One, while it is also serving my father, my family and myself. Doing it with joy, is the part that I wasn’t able to just swing into. I needed to grieve not being with my husband. He is more than my mate in this life. He’s my life-line and being physically near him and with him nourishes my soul and my cells in ways that are central to who I am and how I do all that I do. He’s the silent, behind the scenes, invisible partner in everything I do.

So, the adjustment has taken a little bit of time. Now, when I take my Shabbat break from my father for the two days I have off, I start to miss him and feel pulled back to him. He and I have formed a new bond, similar to the one that we formed when our roles were reversed and I was the infant with huge physical needs unable to meet them by myself. It’s such an interesting pendulum swing and one that so many folks are fearful of.

I am not afraid of being needy or not in control. I am prepared for it and expect it. I also don’t think it’s so terrible to lose control. Part of why I am less reticent than others has to do with my fundamental Emunah/Trust in the Holy One and in the goodness of folks in my life and in the world in general. I also have less fear than most people about what is on the other side. And I believe it’s our calling, all of us, in smaller and larger ways to care for one another on this planet and also for the planet. Some folks will be care-givers of the earth, or a water-shed or a species of frog. Some folks will stand guard over a forest or a flower or a polar bear. Some of us will care for wounded soldiers or special needs children or adults. Some of us will cultivate awareness in art and music and bring comfort or a wake-up call to others. Whatever ways we find to listen and honor the voice of caring in our lives, it is real and present and of value.

As I spend this truly precious time with my father, he is weak, not-well, tired, sad, frustrated about his bodily functions and process and also very much mentally present. He wants to share stories and talk about hard things in his life. He asked me to record him recounting the few days leading up to and the day of my sister Paula’s death. She died at the age of 21 months old, over 54 years ago now. He wanted to share this video with my mother. The two of them have now talked about this time. This is something they never had done and it has been painful, intense and beautiful all at the same time.

To me, it is a huge tikkun/healing. It’s also been that for my parents. It’s never too late to have healing in a relationship or in a fraught situation. My mother and my father, despite all the territory in their past, have found their way back to a very tender place with each other. A place (my sister’s death) that they are closest to and can share feelings that no one else can. Across the 48 years since they’ve been together, this time and this desire on my father’s part and my mother’s willingness to listen and attend to all of this with caring and compassion has created a bridge. That bridge serves everyone in my family and most especially me.

My sister Paula’s death has colored every facet of my life. She’s been very present for me recently. I’ve been feeling her suffering and confusion at being alone, or what I perceive as those feelings, as my father and mother re-live the specific details of her tragic death. Today, I will go to her grave and sing her some songs. Her grave is a very unique and special one that many folks recognize who live here in Boulder. I will honor her, as I have my whole life, by trying to live my life with more gusto and more aliveness, with a double dose of the blending of my mother and father and all that this shared combination of heritage and story means as it flows through my veins and muscles and heart.

 

 

The front and back views of my sister Paula’s grave marker, which was commissioned by my parents and made by DeWain Valentine. The rocks are traditional Jewish offerings that I bring when I visit to commemorate my presence and as place-holders for my memory being as long as a stone’s for her.

The other night at Shabbat in the basement of Rabbi Marc Soloway of Bonai Shalom, we said the Mourner’s Kaddish for a thirteen year old boy who died last week. Children dying is terrible and not how we want our lives or the lives of those we cherish to unfold. Death is just not something we can ever overcome or get away from. It’s not fair, it’s not easy, it’s not fine or pretty or simple. We do all kinds of things to try to wrap it up that way, but the reality of it is anything but wrapped up neat. In the Jewish tradition, we have space, communal space, at every prayer service, for all those grieving to be supported, to name their beloveds and their pain.

This naming doesn’t fix the wound, but it gives us a container, a shared vessel for our hurt to be in, and it helps us feel less alone in our most tender and broken times.

It takes all my resources to show up for this dying time with my father and with others as well. I have very little energy for conversations or interactions with folks, because all of me has to be present now for these precious moments with my father, my brother, my mother and my family. It takes all of me to hold the space as we walk on the bridge between this life of my father’s here and now and the destination he is moving towards. It takes all of me to stay present for the feelings I have about when he will no longer be in a body here with us to tell stories to, or enjoy an artichoke with, or laugh at something silly or remark on something so intelligently that I feel like a total idiot in comparison. My father’s intellectual capacity far out-shines most folks I’ve met. He is still so sharp in his observations and thoughts. I’ll miss that, I’ll miss it a lot.

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Papa et moi.

So now the river of tears flows, as it can only flow when I have some space and time to be by myself and not be having to attend to his needs or anyone else’s. I’m very grateful for my time off, even though I’m acutely aware that every minute I’m away is one less minute I will have with him………forever.

Being present for what is going on in my life is one of the ways I honor the Holy One and my family and the planet. I cannot know when my life will be taken. I cannot know when my father will leave or my husband or a beloved friend or my children. I pray I won’t have to navigate losing a child, as my parents have, and as so many mothers and fathers in history have had to, but I cannot know.

So, every day I hold my family in my heart, in my prayers and I endeavor to honor them. I do this with my friends and my community as well. Mostly right now though, I’m just right here, tending to my father as he falls further from this realm. I hope to help ease his landing on the other side as best I can. I’m not alone in that. My brother and my children have shown up in various ways, as have some of my father’s nieces, nephews and friends to remind him of how precious he is and how much he is appreciated and loved.

What more can any of us do for those we love?

Papa Painting
“Dad wanted to help! He is 94, and doing hospice at home. My sister and I are taking care of him. He has seen me painting tiles non-stop for my big commission, and today he asked if he could help. Took me a little extra time to clean his work, but he was just barely able to do it. He made three tiles. I told him you never know, someone could dig up his tile in 10,000 years. He liked that!” Paul Barchilon

S.O.S (Surrendered Opened Serving)

Wyoming sky
Wyoming sky, from the car my husband is driving, on the way to Colorado, to take care of my father.

S.O.S Surrendered Opened Serving

Softening of Self

Serving over Self

Striving (to) Offer Selflessly

Surrendering of Self

Play with it how you will, it is all the same territory and damn tricky.

I wish this wasn’t the case. There are certainly times when I truly can “serve the Holy One with joy, ivdu et hashem b’simcha.” ~Psalm 90

Serving with joy feels good. Serving with resentment, fatigue, frustration, irritation, wondering if it will ever be over, trying hard but still making folks you care about feel bad, and other not so nice feelings, none of that feels good at all.

This is the territory I’m in. It’s the territory I’m in by choice. So, as I write these words, I have left my Bayside home and am now back in Colorado to be the primary care-giver for my father in his final journey. Since March of this year I’ve flown back and forth to Colorado more times than I can count. I’m done with the back and forth; I’ve finally surrendered.

I just need to be there, give up my life here, for a time, and serve the man who has served me, my brother, my children, his students and his wives so deeply. It’s his turn to just be the recipient. He’s asked for me, which is fairly radical, in the story of our family. He’s also surrendered and recognized that my care makes a difference and he wants what I have to offer.

Nicole and Dad
My dad and me, when he was healthy.

If my life was about achieving success, having a career or being perfectly sculpted, what would I have to bring to my father or anyone in their time of need? This is not a judgement of folks who strive for those things. I am commenting on our society’s over-valuing of these kinds of achievements. I don’t want or need accolades of any kind. That may seem specious, given that I’m writing about my process, my “selfless” process.

Perhaps, it will be seen that way. I share here, and wherever I find an audience, what is true for me. I know I am not alone in these feelings or experiences and that folks feel isolated way too often when they are care-giving.  I choose to be present for my parents, my mother-in-law, my children, my friends, my community and those who I have made covenants with. My spiritual and personal commitments are as real and binding to me as the ones that are linked to my biology, my blood, my ancestry.

This is lifetime work. It is not something I will ever complete or finish. Perhaps it will be lifetimes of work. I hope not. I’m tired. I am looking forward to the promise of singing with the Angels and not having to serve in a body ever again. When I cross over, if I get a choice, that’s the one I want. I have no desire to come back and do any more living over. I may feel differently when I’m 90, if I’m around then, you can be sure I’ll let you all know if this has changed.

My life has been so full and joyful. It’s also included extremely hard times and situations. I’m just like every other human, on our spinning planet, in this way.

The difficulties in my life aren’t comparable to the hardships of most folks’ lives. I live a life of privilege in many regards. Difficulty, is a relative thing though. If you string the events in my life up by the tragedies and failures or by the joys and wonders, you get different pictures. It’s often felt like a pendulum swinging wildly between the two poles.

I do not believe that you can create the life you want and that if you just attune and align with the perfect philosophy or diet or get things right personally all your problems, fears, complications and debts will go away, or the president you want will be in power, or folks will do what you want, and all will be perfect and polished. I am not interested in my life being polished or shiny or perfect. I’m not interested in weighing the right amount or looking the right way or doing things according to someone’s current ideal of what is fashionable or healthy.

I am interested in mastering, to whatever extent I can, what the Holy One sets before me, not what I set before me.

Shiviti
The Shiviti Prayer: I have set the Holy One Before Me Always

And, I fail every day, over and over. I fall down all the time and sometimes, even with all my personal padding, I am bruised all over. The reality of suffering is so damn intense, it’s not mild, it’s not pleasant, it’s not calm, quiet or easy. It’s a full-on completely body-slamming story.

I live it in my body. My empathic nature is not something I am dimming or turning the volume down on. I’ve already done a volume shift to walk around and look semi-normal my entire life. I’ve learned to have a boundary between myself and others. Sometimes, though, I will still be brought up short, if another person is having trouble breathing, I also will start choking. I’ve said this all before, and I’m restating it for the following reason. Being empathic and devoted to easing the suffering of others is a full-time experience.

It is not a seamless process. Sometimes what I experience is a tsunami, sometimes it’s a slow flow of energy, like air leaking from a balloon, and other times it’s just in the background. Sometimes, I feel as if the life is being sucked out of me, Other times I feel as if I am being gifted with tremendous energy and all the gears are working properly; I’m loving, I’m being loved and I’m serving with joy.

These are the moments I live for, when it all aligns and the warm honey liquid healing/Tikkun unfolds like a lotus opening. That’s what I want and it’s a palpable real experience that I have had and hopefully will have again.

It’s the true goal of my soul. S.O.S traditionally stands for Save Our Souls, and indeed, that’s what we are called upon to do, when we care for children, elderly parents, otherwise-abled children, family, friends or spouses. We are being asked to surrender our own time-frames, needs, and lives over to the care of another.

This is not something we do as a sacrifice. The word sacrifice is one I do not resonate with. In Hebrew, we make offerings. They are called Korbanot/Offerings. You can make a korban that is for wrongs you have done, or in gratitude or in praise, or for a holiday or special life event. A korban is brought forth willingly and given with intention.

If you have never surrendered yourself over to another person, then this will seem completely foreign to you. In our society, there are more opportunities to give than you can possibly imagine. And, when the world feels insane, there is no better feeling than knowing you have made a difference in the suffering quotient of another human being or the planet. When we offer willingly of our time, our hearts, our bodies, there is a return offering that comes our way and it is one that cannot be measured or calculated. It can feel like a river of life-blood, a continuous flow of manna, heavenly nourishment and goodness.

It may take some time to recognize this, due to the stress of continuously extending for another, but when you do feel the flow, it is a game-changer. Simply Offering Simply that’s my goal.

I’m not going to list the mistakes, the all too common ones, most folks and I have made when offering self. I do want to share four basic keys that make a difference for me and enable me to give myself over and over in this and other situations.

Shabbat over Serving: Make sure you take one or two days off a week, figure it out, find friends or others to give you a break. If you cannot manage a day, manage for as long as you can. Make your time off regular, same day, same times. This will mean your body and heart and mind will adjust and know they are getting a break and it will train the person you are caring for to not expect your presence at that time.

Self-Care on Start: Don’t try to take care of someone else if you aren’t attending to the care of yourself as well. Get regular massages, work-outs, walks, acupuncture or whatever it is that nourishes you. It is not optional or secondary, it needs to happen before you help others, if you can, and consistently.

Start out Slow: Take your time getting to know the rhythms of the person and place where you are. Folks who are sick or elderly are moving at a very different pace from the one that you are. It is more of a service to them for less to happen, than for everything to get done, and it’s impossible to get everything done, so give up on that.

Stay Engaged over Signing Out or Off: When things get edgy, with other family members or there is a problem or grumpiness from a care-giver or the person you are caring for, or anyone in the situation, don’t give up or resign. Just give it some space, take a break, a day or a few hours, and come back to the situation. It’s a given that there will be rough patches. Expect these moments and work to prevent them, but remember that if you stay centered and apply the other three suggestions here, a solution will be found.

On that note, of solutions to be found, I’ll close.

Dad Waving
My father in a moment of less pain in the new recliner/life chair I realized we needed to get him, in the middle of one particularly difficult night. He can sleep for two or three hours comfortably here, and it’s his favorite spot to be now.

Nicole Barchilon Frank writes to you, from her home in California, and in the future or the past, she writes to you from the home her heart calls her to—wherever that might be…

  • Originally published in the Mad River Union on December 13th, 2017.  Changes have been made in this online version.

 

 

Papa’s Perseverance, Pain and Power

Dad on Bike
My 94 year-old, WWII French Resistance fighter of a father, still resisting tyranny, the tyranny of a body aging. He is a hard-working, hoping to heal himself human and he blows my mind.

This post was written over the course of several weeks. I am now home in California:

Wednesday June 21st, 2017~ I’m relaxed at this exact moment. I just had a two hour Tok Sen Thai Massage at Siam Sensation. This is my first break in six days since flying to Denver on June 14th to take care of my father post his wife’s death on June 7th. My brother and his partner are spelling me for a few hours. It’s been hellish and hard and I’ve had no time to cry, really. Tears leak out in moments, but the work-load is pretty constant. Caring for a 94-year-old beloved who is in fairly constant emotional and physical pain is a full-time, many person endeavor. My father’s just six weeks from having fallen and broken his hip, then gotten hip replacement surgery, followed by a minor heart attack two days later and being intubated despite his DNR (Do Not Resuscitate) order and then having to be in a rehabilitation facility for a month and watch his beloved wife, of the last 18 years, Judy wither away and die. This is the territory I entered when I came to Denver for the second month in the last three. I spent all of April and one week of May here helping with the hospital stay and the transition to the rehabilitation facility.

It’s a week later, once again, getting a respite at the home of my brother, his partner and my daughter. Sitting in the back yard of my childhood home. My father gave my brother and his partner this home when he moved to Denver to be with Judy. This was where I spent half of every week as a child. It’s more lovely than it ever was when I was growing up. My daughter has filled the downstairs with the art of my grandmother, her great-grandmother Perla Barchilon, her grandmother/my mother Helen Redman, and her other grandmothers’ (Maren Frank and Rachel Heller’s) art is also all over, as is my brother Paul Barchilon’s and also my daughter’s own art. The place is clean and colorful and not-cluttered. It feels like home in a completely different way than it did as a child. My brother and his partner also live upstairs in the home they designed and it is completely fantastic as well and full of art, beauty and calm.

Papa blue robe
Painting of my father, by my mother Helen Redman, in the entry way to the downstairs, pottery by my brother Paul Barchilon, decor by my daughter

Is this  where we should move my father? Should he go into an Assisted Living/Nursing home, a thought that initially made him cringe (since starting this article my brother and his partner looked at many homes and found two that are within budget, barely and that my father also didn’t hate). We cannot afford full-time care-giving for him at his place through an agency. We cannot afford over-night care for him either through the agencies that provide that. With his funds, possibly a few hours a day could be managed, but that’s not going to cut it, in my opinion. Furthermore, he hasn’t been alone since March 30th when he fell and broke his hip. We are most likely, at this point, hiring someone to care-give outside of an agency, which is half the cost, which is pricey, but within his budget and allows him to live at home, which is what he wants. My brother will have to manage all of this and we will vet the person and make sure their police-records are checked, but it’s not the same as a family member.

Shira Home
My daughter’s clean and lovely living room downstairs from my brother’s place full of books and beauty.

My tears are still intermittent. The reality is that my father cannot live on his own, not yet, perhaps not ever. Despite two months of my time and life and the practically constant care and presence of my brother over the last six months, my father is not healed enough to live on his own. Both my sons have flown out to help for a week each and my daughter is also a regular presence in his life and home now. My Papa thinks he wants to be independent and on his own in his own home, but he’s had the loving and devoted presence of his wife in that apartment and since her death, he has had a steady stream of loving family. This will no longer be the case. There are kind and devoted folks in his building that care about him, but they cannot care-give him or be there in any kind of medically responsible way. He doesn’t want to live with my daughter in her study, which we would convert to a bedroom. He doesn’t want to live anywhere but his own home, who can blame him for that?

I haven’t had the energy to see any of my friends while I’ve been here. I cannot even make phone calls or emails much. The schedule at night has been my father needing help every two hours or so, with blankets, incontinence issues, pain management, difficulty breathing, thirst, etc… So, I’ve been in a pretty constant state of sleep deprivation, with nights off once a week or so on Shabbat if we pay the $300 it costs for one night’s care for him or when it has worked for my brother or my daughter to spend the night. Obviously not a sustainable situation.

Issac Nicole feet
Issac’s wounded foot taking a break, next to my tired feet from hours of moving things around in Dad’s apartment to try to get his office converted into a room that a care-giver/live-in could actually live in!

And I’m not even touching the sadness here, the pain of my father’s loneliness sitting at the table while I do the dishes or the cooking and he looks out the window missing his wife with every fiber of his frail body and incredibly clear and cogent mind. He told my son Issac and I, while explaining that he was going to speak to us as if we weren’t in the room so he could say what was on his mind, “I pretend she is on a trip or out doing errands and this lasts for a few hours and then I remember that she’s never coming home.” There were tears streaming down his face while he shared this.

Dad Post it
The note I found in Judy’s bedside dresser while cleaning things out in my father’s apartment.

This situation is so damn hard.

dad and Judy
Thanksgiving in Colorado a few years ago. 

And, my daughter said the other night, it’s not even bad really, because we are all loving with him and each other and he isn’t destitute (he taught French at CU Boulder for 45 years and has a good pension). He has options and we will figure out how to navigate all of this, with the capable minds and bodies of my daughter, my brother and his partner here in Boulder and myself and my family here in California. In the long-run, this story is a love-story, a family caring for each other and the person most in need with kindness, effort, intelligence and profound love. Whatever difficulties have been in my past with my father or in my brother’s past; my papa had a temper and he has never approved of my spiritual calling or my emotional nature (he thinks I should have been a lawyer!). Still, he has always loved us, gifted us with his time and caring, and been there for us in BIG ways. It’s our turn now.

Dad Waving
My father in a moment of less pain in the new recliner/lift chair in his living room at home.  I realized we needed to get him this chair, in the middle of one particularly difficult night. He can sleep for two or three hours comfortably here, and it’s his new favorite place to be!